Patient Comments: Bile Duct Cancer - Treatment

Question:

What kind of treatment did you have for bile duct cancer? Submit Your Comment

Comment from: Gary m, 55-64 (Patient) Published: July 19

I was diagnosed with intrahepatic cholangiocarcinoma (bile duct cancer) in October 2018 after breaking my hip. The tumor was the size of a peach. I underwent surgery in December 4th in which they removed 60 percent of my liver along with my gallbladder and three lymph nodes. I then underwent six months of chemotherapy in pill form in which I took the pills twice a day for two weeks, and then a week of rest, then repeated this for six months. I just had an MRI yesterday and I am one of the lucky ones, so far no sign of the cancer coming.

Comment from: Sarah, 55-64 Female (Patient) Published: July 19

I recently had ablation surgery on the liver. The tumor was small, I was lucky. The tumor was the size of my thumb. Radio ablation was performed on the 8th quadrant of my liver. It was intrahepatic biliary cholangiocarcinoma.

Comment from: Sivle Yelserp, 65-74 Male (Patient) Published: May 19

I was diagnosed with bile duct cancer in January 2014. I had terrible jaundice, itching and was unable to eat. Surgery was not possible, so I agreed to radiation. Stent placed allowed for very specific radiation. I went on an herbal program also for nine months. They had only one prior case so were uncertain as to the outcome. I still have an external tube which drains the bile duct internally that has to be changed every three months but all looks well at this point. Recently I lost a friend to this cancer, but his had spread to the stomach. I was fortunate to have early symptoms which sent me to the doctor prior to any spread. Just trying to stay healthy and positive. If you are reading this I hope you get some positive vibes from this post as there is not much positive out there.

Comment from: Wauda, 55-64 Female (Patient) Published: December 03

I was diagnosed in 2008 with intrahepatic cholangiocarcinoma, stage IV. I had a large mass in left lobe of liver. Gall bladder and left liver lobe were resected and I had adjuvant chemotherapy treatment. I was stable for two years. Four tumors showed in right liver lobe. It was inoperable at this point. I had chemotherapy treatments to reduce size for embolization. Not much change. I had radiation bead embolization via angiocatheter. The bile duct cancer was rendered inactive. I have been stable for four years this December. I will have MRI scan in January to check status. I am sharing this so that others may discuss radiation bead therapy with their oncologist. The procedure can also be repeated if needed.

Comment from: Lulabop, 45-54 Female (Patient) Published: June 24

I was diagnosed with inoperable intrahepatic cholangiocarcinoma (bile duct cancer) in January 2015. I had a biliary stent fitted to drain bile from my liver and vein stents put in to relieve the pressure that the tumor was putting on the hepatic veins. I have had 4 rounds of gem citations/cisplatin chemotherapy. CT scan in May showed stable disease which means there is no change size-wise in the tumor following the chemotherapy. It is now June 2015 and I am feeling reasonably well. I am on permanent antibiotics due to recurring infections of the biliary stent but apart from that am currently not receiving treatment. I am due to have another scan in August 2015. Following this I may have further chemotherapy.

Comment from: Visio204, 55-64 Female (Caregiver) Published: July 05

My mom was diagnosed with stage 4 cholangiocarcinoma when she started showing symptoms such as jaundice, sore stomach, etc. I wonder if this is a fast growing cancer.

Comment from: Bob C, 75 or over Male (Patient) Published: June 16

In November 2010 I had nausea and pain on a cruise for a few days. Two weeks later same thing. Two weeks later, home for Christmas, same thing, but nausea continued and became jaundiced. Endoscopy showed bile duct blocked; stent relieved the symptoms. Two weeks later it was diagnosed as bile duct cancer. March 1/2011 I had Whipple procedure. I lost 60 lb. that I started regaining in April 2011. I had no chemotherapy, radiation or other treatment.

Comment from: Sunshine, 75 or over Female (Caregiver) Published: May 27

My mother was diagnosed with external bile duct cancer 5 years ago. The only treatment offered was targeted internal radiation. There was a reduction in the size of the tumor but unfortunately there was extensive collateral damage to her liver and she passed away within 6 months of her treatment. If we had it to do over again we would not have elected this radiation treatment. I truly believe the damaging of her liver caused an earlier death.

Comment from: MaryD, 55-64 Female (Patient) Published: September 10

I had chemotherapy for brain cancer and pancreatic cancer. Although I had colon cancer 3 years prior, this was my second primary cancer.

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