Patient Comments: Ataxia - Types

Question:

What type of ataxia do you have? Submit Your Comment

Comment from: J M Dean, 65-74 Female (Patient) Published: May 27

Guillain-Barre syndrome, Miller Fisher variant was diagnosed in January 2006. Ptosis, ophthalmoplegia, and ataxia followed by persistent binocular vertical diplopia after my eyelids opened, continue to challenge me especially when I am tired, but I move without assistive devices.

Comment from: Aussie Crawf, 65-74 Male (Patient) Published: April 22

I am currently 65 and I believe I have had spinocerebellar ataxia (SCA) all my life. I had violent trembling in my upper body from 5 to 30, then it lay dormant, till I was admitted to hospital with a suspected stroke last year. It was while I was in hospital that the resident neurologist sent me to have an MRI scan and after viewing it, concluded that I hadn"t had a stroke, but I have SCA. My symptoms are falls, staggering, difference in voice sounds, occasional swallowing and disability to put a sentence together without having enough breath to say it. I furthermore had a prescription filled for the muscle relaxants: Minipress and Duodart, as I had an enlarged prostate at the time. It should never have been prescribed to me, an ataxia patient, as our blood pressure (BP) is already low when we stand and high when we lie down, causing my BP to once read 42/76, far too low. The world medical doctors have got to realize that certain medicines and tablets are not for ataxia patients.

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