Patient Comments: Asperger's Syndrome - Experience

Question:

Please describe your experience with Asperger's syndrome. Submit Your Comment

Comment from: Pat, 45-54 Male (Caregiver) Published: March 24

I recently met a lovely guy on an online dating site. He told me he hadn't had a woman in his bed in 22 years and that he is very inexperienced in sex, however, he talks nonstop about sex. He displays all the symptoms of Asperger's, very poor social skills, no filter, hoarding in his house and his car, very anxious, and extreme religious beliefs. He is unaware of constantly talking about the one subject all day and week. There has been no one in his home for years, a very isolated lifestyle.

Comment from: Sojourner, 35-44 Female (Caregiver) Published: January 08

I am responding to the previous text from an individual who shared their experience with Asperger’s syndrome. I am a therapist who works with individuals diagnosed with Asperger’s. I also am married to a man who has this and so does our oldest son. Please seek out a professional who is skilled in this area. We care very much. We will help with social thinking skills as well as validating your life experience. You can live a life that is meaningful and purposeful. Hugs to you.

Comment from: Helen, 35-44 Female (Patient) Published: August 20

I’m undiagnosed, some of my Asperger's syndrome symptoms I can think of are tunnel vision, awkward with emotions, intense gaze, hard to process information in conversation, overstimulated fast, find eye contact hard, feel facial expressions do not fit conversation, worry a lot, no sense of direction, forgetful, and don’t like crowds.

Comment from: Blair , 13-18 Female (Caregiver) Published: June 25

My daughter is 14 and she has an Asperger’s syndrome. She is very bright. Her IQ is 130. At the same time, she has trouble making friends and has a mild depression and a low self-esteem. She likes to wear a jacket with a hoodie as a protective shield. Very, very shy. When our neighbors greet her, she prefers to nod or just wave her hand. She is seeing a specialist. We are trying to help her.

Comment from: Matt, 45-54 Male (Patient) Published: June 05

It took me until I was halfway through college before I realized people would pick on me because they wanted to be friends. That did not compute as a kid with Asperger's syndrome and it made my life a living torture. I still can't get all cues or hints from people, especially from the ladies. I have a broken engagement because she was passive aggressive and wouldn't spell things out. I am terrible at workplace politics and have trouble advancing my career. I'm 48, single, and frankly feel like I have no future.

Comment from: EAF, 7-12 Male (Caregiver) Published: June 16

It has just been brought to my attention that my son has symptoms akin to Asperger’s syndrome. I’m now researching.

Comment from: Elite, 35-44 Male (Patient) Published: August 12

My husband has lived with Asperger's syndrome but was able to persevere through the cracks. He has also dually had to deal with psychopathic symptoms all the while.

Comment from: Nurse Asper, 45-54 Female (Caregiver) Published: May 29

Asperger's syndrome can be inspirational and opens up the world in a unique way. We are adventurous and try new things and can see things in a different way to inspire others. Life is exciting and we don't take any nonsense from others. Very positive attributes! It also helps me as a nurse to be strong in trauma incidents so I can do my best job. And I love horses to death and what's wrong with being obsessed with something you love? I have horse posters and small and larger statues and I'm proud of that!

Comment from: Daniel, 45-54 Male (Patient) Published: April 09

I have Asperger's syndrome and one thing that really annoys me is spokespeople going on about how it's all 'positive', it's not an abnormality and if you dare call it a disorder they hit the roof. As someone who's gone through life with Asperger's as a total failure, unable to hold a job, no friends, no relationships, I wouldn't wish this upon anyone. It's nice and all if you have the money to afford a diagnosis and have the support of others, but if you don't then life with Asperger's is just terrible.

Comment from: Luis, 19-24 Male (Patient) Published: March 19

I wouldn't really call Asperger’s syndrome a burden but it does have its downs. For instance, getting to know new people is a lot harder than normal for me since I almost freeze up or just lose the ability to think straight in a conversation. It also makes me subconsciously overanalyze what a person is saying or what a person thinks of me as a person, which can cause me to not want to approach someone I want to talk to. But to me the ups far outweigh the downs, it's a lot easier to learn languages!

SLIDESHOW

Autism Signs in Children: What Is Autism Spectrum Disorder? See Slideshow
Comment from: Tattoo, 25-34 Male (Patient) Published: September 25

I just heard about Asperger's syndrome today and I am 26 years old. I can’t maintain myself sociably; what I mean is that I find it really hard to talk to strangers and well. It has led me to not have friends. I don’t have a job because my brain likes to see myself fully tattooed on the mirror so you can imagine. I surpassed 100 tattoos and didn’t even realize it. I believe that people from the outside see me as a cool sociable looking person. That’s not true. I’m lonely and depressed.

Comment from: Lisa, 35-44 Female (Patient) Published: July 27

I had some minor annoying back pain for years that would come and go, and the day before it was a bit worse than normal. The next morning I was in the absolute worst pain of my life. I tried going to work and getting out of the truck about killed me. My wife picked me up, I went to the chiropractor, and he sent me for an MRI. After rolling around on the floor in agony in the waiting room they got me in, the pain was shooting/burning down my right leg. After MRI it was spreading down my left leg too. They said I had cauda equina syndrome.

Comment from: thea, 25-34 Female (Patient) Published: May 09

I have about had it with Asperger's syndrome! Just 3 days ago, my youngest and I went to a fast food place. I proceeded to purposely rear end a man in a big Chevy truck, who had pulled up quickly just to cut in front of us. There were 2 lanes at the counter, we ordered, got the total, and started pulling up. The guy next to us quickly drove up as fast as he could without even waiting to hear if his screen was correct or even get a total! So, I hit him! And I’d do it again! My concern is, I am extremely angry and impulsive! And just stressed! I need help. The things I do and say daily are scary, violent, and ridiculous! I know better but cannot stop!

Comment from: Mondragon1, 25-34 Male (Patient) Published: December 26

I am convinced I have Asperger's syndrome. I just barely found out today. I must say, I read all the comments and disagree with them, sorry but I feel it is true. Anyway, the way I found out is that I matched with a tinder date. After meeting in person, it was, at first, turning out to be a very great 'meet-up'. But later, things all went downhill and it was as if every single word that would come out of my mouth would just make matters worse. Luckily silence resolved it all.

Comment from: Too late for me, 55-64 Male (Patient) Published: February 28

I'm just now getting a lot of answers to things that I could never understand. I still have a lot of questions where before I didn't know enough to even ask questions. I can see where some would feel like Asperger's syndrome is not a problem but a benefit, it would have been great to have that perspective during my life. Not understanding the 'demons' in my mind that I was usually able to hide eventually cost me four marriages. It is too late for me but please let those with this condition know about it as early as possible. It could make for a lot less sleepless nights.

Comment from: Egge, 3-6 Female (Caregiver) Published: January 28

My child who has Asperger's syndrome is slow at walking, talking is delayed and cannot pronounce, there is lack of emotion, is quiet, seems disinterested, and has no social skills.

Comment from: Granem, 3-6 Female (Caregiver) Published: December 16

We are at our wits’ end with my grandson who has Asperger’s syndrome. He pulls his hair out if he does not get his way, screams and shouts. I have told my daughter there should be a consequence for every action that is not appropriate, but she disagrees. I suggested we take a privilege away, and she says no. He breaks all his toys, throws his food on the floor, kicks his mother, uses the swearwords at her and calls her an idiot, and she gives in to his every whim.

Comment from: asparagus, 25-34 Male (Patient) Published: November 08

Your website says Asperger's syndrome is a disorder, which I find to be a bit brash to say. We Aspergians in social circles consider Asperger's to be an aspect of personality, not a disorder or disease or mal-anything. We don't like it when people call it a disorder which implies it needs a 'cure'.

Comment from: Emma, Female (Patient) Published: April 11

Please do not say that we suffer from Asperger’s syndrome, it is not a disease and we aren't suffering. Please don't assume that it is a burden to us because it's not.

Comment from: Jane, 3-6 Female (Caregiver) Published: November 04

This little girl with Asperger’s syndrome is smart and sometimes very sweet however she is very different from her peers has a hard time joining in with others and has a terrible expression on her face when out in public.

QUESTION

Autism is a developmental disability. See Answer