Patient Comments: ARDS (Acute Respiratory Distress Syndrome) - Diagnosis

Question:

Describe the events that led to a diagnosis of ARDS. Were you being treated for another condition? Submit Your Comment

Comment from: Rainy, 55-64 Female (Patient) Published: February 21

I lost about 100 lb. thanks to lap band surgery. I went in to get my arms fixed for saggy skin. I aspirated during surgery. I was on ventilator for 9 days. I had ARDS and sepsis. I was put in a coma and paralyzed. They tried to prepare me for ECMO but my jugular ruptured. I've had to learn to swallow again, working on building muscles and gaining strength back. Very weak! It was a very close call. They thought I would have brain damage. But fortunately I am clear minded. It's not been an easy fight.

Comment from: Black bear, 55-64 Male (Patient) Published: July 17

I went to the emergency room and was diagnosed with double pneumonia and the flu. I was going downhill fast. My sister insisted I be transferred to the hospital in Philadelphia. I was diagnosed with ARDS. I was put on an ECMO machine. The ECMO machine takes your blood, oxygenizes and cleans it and puts it back in your body. I was in a coma for 7 weeks. My family went through torture. They were told I might be a vegetable or they might have to unplug me. I woke up and recovering now.

Comment from: Saltydog32 , 35-44 Female (Patient) Published: May 29

Sepsis and septic shock due to doctor who perforated my bowel by accident during an outpatient ovarian cyst removal. The doctor didn’t realize my bowel was cut until it was too late. I was in a fight for my life!

Comment from: Husband, 35-44 Female (Caregiver) Published: September 03

My wife was admitted to a local hospital on 3/27/14 when she was first diagnosed with pneumonia. Two days later she went on a ventilator. Several days later we were told she had mold in her lungs, they called it mucormycosis. Near death my options for her were a rotor-bed, and another hospital, or let her pass on. I was informed by one of her nurses about another hospital. She was flown there that night. Two days later I was informed her prognosis wasn't good. Long story short after weeks of being on ventilator she was diagnosed with ARDS.

Comment from: Gale, 55-64 Female (Patient) Published: February 26

I began feeling ill on a Monday and by Wednesday was in the hospital with pneumonia. By Thursday night I was in the ICU where I spent 6 days most of which I don"t remember. My oxygen levels were low and I"m told I didn"t make much sense when I spoke. I was diagnosed with ARDS and spent a total of 2 weeks in the hospital and then spent 2 1/2 months out of work recuperating from the illness. I was so weakened after the 2 weeks in the hospital that I had physical therapy for 8 weeks. I"m told I was very near death.

Comment from: mdb, 45-54 Female (Patient) Published: January 14

As a teen I received a series of shots and immediately received an ambulance ride to the hospital. My diagnosis was ARDS (acute respiratory distress syndrome).

Comment from: Rosemary, 55-64 Female (Patient) Published: August 03

This is to the person whose husband died of ARDS. She said he began with tingling and loss of sensation in his hands and feet. This sounds like what I had, which is Guillain Barre syndrome and not ARDS. If you are not treated promptly when you present with GBS you will often need to be on a ventilator. I think they diagnosed him wrongly. My brother-in-law died 2 months ago of ARDS and his started with sinusitis and pneumonia.

Comment from: momlen, 65-74 Male (Caregiver) Published: February 26

My husband was admitted to hospital with loss of feeling in his feet and tingling in his hands. Every test was run and nothing found. He continued to lose feeling, oxygen levels dropped, and blood pressure very high. Long story short he continued to get worse, unable to feed himself, or function. He was aspirated, ended up being put on ventilator, RotoProne bed. This man was not sick prior to all these events and was going to work. He passed away 1-23-14 after being admitted 1-2-14. His death certificate read cause of death ARDS. He was under extreme stress before all these happenings and don"t know if this could have been cause of this.

Comment from: Danielle, 55-64 Female (Caregiver) Published: July 14

My aunt was admitted to the hospital with pneumonia, which then turned into ARDS (acute respiratory distress syndrome). Her oxygen level was 20 at one point! We sincerely thought she wasn't going to make it. She did crash at one point, but was brought back. She was admitted to the hospital in December 2013, and was released about 6 weeks ago (May). She is still undergoing intense physical therapy but she is alive and recovering. Thank goodness!

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