Patient Comments: ALS - Early Symptoms

Question:

What ALS symptoms did you notice early in the course of the disease? Submit Your Comment

Comment from: Carel, 45-54 Male (Patient) Published: August 25

With my amyotrophic lateral sclerosis (ALS), the first thing that happened almost 2 years ago now, was speaking as if I were drunk. I wasn't. I initially did improve speech (articulating clearly but slow) but now I can no longer speak in an acceptable way. Then, a year later eating became problematic, I was biting my tongue and lips, and chewing became weak and less controlled. Soon after that some fingers started to fail me and things would drop out of my hands. Somewhere at that time bulbar ALS was diagnosed.

Comment from: Nettie, 65-74 Female (Patient) Published: April 22

My ALS (amyotrophic lateral sclerosis) symptoms started out with a "foot drop" on my left foot. From there my left leg lost all muscle tone and now the entire left leg muscles are gone. Also my fingers and thumbs "contract" at times. Left arm is losing muscle tone too.

Comment from: Susan, 55-64 Female (Patient) Published: January 15

With ALS, my first sign that something was wrong, was my slurred speech. And then the inability to eat without getting choked, strangled, and coughing.

Comment from: Gail s, 65-74 Female (Patient) Published: July 19

I was tripping and unable to get upstairs due to amyotrophic lateral sclerosis (ALS).

Comment from: Ella m, 45-54 Female (Patient) Published: May 02

I have been suffering from amyotrophic laterals sclerosis (ALS) disease for the last three years and had constant pain, especially in my knees.

Comment from: Crzijane, 55-64 Female (Patient) Published: December 17

I have ADHD, OCD, depression, primary biliary cirrhosis (autoimmune disease) and ALS. I didn't have health care I just thought it was a stroke, but it started with my voice. When it started to get worse I went to a neurologist.

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