Patient Comments: Alkaptonuria - Treatment and Resources


What treatments or resources have helped you deal with symptoms related to alkaptonuria? Submit Your Comment

Comment from: stephanie, 45-54 Female (Patient) Published: September 29

I am trying the no meat, dairy, protein diet for alkaptonuria. I am also taking 1000 mg vitamin C a day.

Comment from: v152, 75 or over Female (Patient) Published: November 20

Since I have arthritis big time and am a Slovak, with blue skin only at my thumb joints which varies in color intensity, I am wondering whether the arthritis is from this strange condition alkaptonuria. I really want to get rid of the arthritic condition and the average doctor doesn't have a clue.

Comment from: KumuKaya, 55-64 Female (Patient) Published: June 13

I was diagnosed with ohcronosis alkaptonuria (AKU). They only found it after having performed three major surgeries on my neck, none of the surgeries they tried ever healed, when they discovered I had AKU. They stopped trying to fix my neck and told me that my bones would never heal from the surgery they did. My neck could not be fixed.


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