Patient Comments: Alkaptonuria - Treatment and Resources

Question:

What treatments or resources have helped you deal with symptoms related to alkaptonuria? Submit Your Comment

Comment from: stephanie, 45-54 Female (Patient) Published: September 29

I am trying the no meat, dairy, protein diet for alkaptonuria. I am also taking 1000 mg vitamin C a day.

Comment from: v152, 75 or over Female (Patient) Published: November 20

Since I have arthritis big time and am a Slovak, with blue skin only at my thumb joints which varies in color intensity, I am wondering whether the arthritis is from this strange condition alkaptonuria. I really want to get rid of the arthritic condition and the average doctor doesn't have a clue.

Comment from: KumuKaya, 55-64 Female (Patient) Published: June 13

I was diagnosed with ohcronosis alkaptonuria (AKU). They only found it after having performed three major surgeries on my neck, none of the surgeries they tried ever healed, when they discovered I had AKU. They stopped trying to fix my neck and told me that my bones would never heal from the surgery they did. My neck could not be fixed.

QUESTION

The term arthritis refers to stiffness in the joints. See Answer

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