Patient Comments: Abdominal Adhesions - Symptoms

Question:

Describe the symptoms associated with your abdominal adhesions. Submit Your Comment

Comment from: Maria , 65-74 Female (Patient) Published: April 01

I had my appendix removed last December 2018 and it has been 3 months of unbearable pain around my belly button. I'm unable to eat or do anything I love to do. I had a lot of blood tests, CT scans, and everything comes back normal. I just had a colonoscopy today, I was referred to a surgeon for a second opinion, and they believe I have scar tissue! I don't know if abdominal adhesions are causing my pain, but just know that I can't live this way.

Comment from: Frustrated, 45-54 Female (Patient) Published: February 08

My symptoms of abdominal adhesions were constant, abdominal pain on the right side only. If sitting for too long or standing for too long, the pain literally bowls me over. The pain is like a pulling sensation when moving and feels like a ball of scar tissue when seated, which feels like a pressure pain.

Comment from: Livewithit, 65-74 Female (Patient) Published: January 03

I had a hysterectomy in 1987 and have had numerous surgeries thereafter. I had endometriosis and abdominal adhesions and am still in pain. My body seems to be twisting in the pelvic area. I am now going to a chiropractor, massage therapist, and myofascial therapist just to be able to function. I have to limit my activities and the older you get the more restricted you are. The body is not made to have surgeries and no one mentions scar tissue and pain after a surgery.

Comment from: TahirMesa, 55-64 Male (Patient) Published: October 24

I had laparoscopic cholecystectomy in May 2002. In recovery I had burning pain. About 72 hours later I was in ICU and a new doctor said I was dying. I needed stent in pancreas to stop the bile duct leak. I nearly died from the pancreatitis attack caused by the stent and Bextra stopped it and saved me. I had adhesiolysis in April 2016 for my abdominal adhesions. The entire right side now is in pain, the appendix area the most, but the walls of scar tissue and necrosis, ensuring no expansion for food, is the cause. I cannot cope on morphine and fentanyl. We all need Bextra!

Comment from: YoungNjustwanttolive, 25-34 Male (Patient) Published: October 09

My pain started in 2004 when a cyst the size of a grapefruit ruptured. Since then I have had 12 major surgeries; cyst removals, a C-section, and a full hysterectomy. I am 29 years old. I have had one abdominal adhesion removal surgery in 2016 and was told I would be pain free for 1 1/2 year and be back to do another. The pain is unbearable sometime. Life has stopped for me and fight just to do daily things have set in. I am set to see my doctor again in November for surgery. I am sick of pain.

Comment from: BohemianPoet, 19-24 Female (Patient) Published: June 11

I had a laparoscopic appendectomy May 2018. A few weeks post-operation, I had an occasional twinge in my lower left abdomen. Late October 2018, I started experiencing pinched nerve pain in my left labia while sitting. This pain progressed to nerve pain with walking and spread down my left leg into my foot. The pinched nerve in my leg was level 10 pain. Now, I have a functional leg length discrepancy. This is either sacroiliac joint dysfunction, pudendal neuralgia, and/or pelvic and abdominal scar tissue/adhesion.

Comment from: 2dippy2, 65-74 Female (Patient) Published: March 19

I am 69 years old, and I have had 2 C-sections, appendix rupture and also gall bladder rupture. During the gallbladder surgery they had to scrape the lining of my stomach to remove abdominal adhesions from the appendix surgery. Long story short, I had a hysterectomy, kidney stones removed surgically, and then I had diverticulitis of colon. I had three surgeries one each in 2010, 2011 and 2013, and a tumor removed in 2015. I have had more colon scopes and scopes down my throat that I lost count. If I eat, I pass motion and throw up, it hurts. I am losing weight, and have fever.

Comment from: darahc, 45-54 Female (Patient) Published: March 07

I am 54 years old. I had a C-section at 41, and a hysterectomy a couple of years later but kept my ovaries. I have bad abdominal pain daily. I am wondering if it is being caused by abdominal adhesions.

Comment from: Autumn Mist, 55-64 Female (Patient) Published: September 26

I have had tandem and ovoid radiation for cervical cancer which has caused painful adhesions down there and in my lower pelvic area. It feels like I am being stabbed with a knitting needle and labia is being pinched. They say there is nothing they can do for it. I take Tylenol and a heating pad helps greatly as does the heated seats in my car, and holding the shower nozzle down there with very warm water helps. I can't sit on hard surfaces and need extra cushioning.

QUESTION

Bowel regularity means a bowel movement every day. See Answer
Comment from: Judy, 45-54 Female (Patient) Published: September 10

I have had a total of 6 pelvic surgeries in the past 20 years. The scar tissue is getting unbearable. I'm in so much pain from the abdominal adhesions. I wonder if hydrocodone will help my pain. I can't even lie on my belly at all.

Comment from: Alexis , 25-34 Female (Patient) Published: June 18

I have constant pain in pelvis and abdomen from abdominal adhesions. Organs are fused together so there is constant pulling and tearing.

Comment from: Indianagirl38, 35-44 Female (Patient) Published: June 14

I was 16 years old and 114 pounds. I got pregnant and extremely huge. I gave birth to a healthy baby girl 21 years ago. After I had her I never really lost my belly and wonder if it is because of abdominal adhesions. I still look 8 months pregnant. Belly is tight and hard. Feels like I'm actually carrying the weight of a baby. When I lie down my belly looks flat but when I sit up or stand my pregnant belly is back. I'm not big anywhere else just only in my belly. I've been dealing with this for 21 years now. I have a lot of lower back pain too. Also when I turn into certain positions or into certain sexual positions I get these charley horse, knots that cramp up. They can appear in my upper abnormal area in the middle or on the right side. I've had 6 laparoscopic surgeries; appendix, gallbladder, exploratory, tubes tied, removal of big cysts on the right ovary, and removal of my right ovary. Then I had a hysterectomy and it was done in a C-section cut.

Comment from: B, 45-54 Female (Patient) Published: September 08

The abdominal adhesions started with a C-section 33 years ago. I had 3 C-sections, hysterectomy, abscess removed from bowel, oophorectomy, part of my rectum removed and a couple of small surgeries. The last 9 years I have struggled with partial bowel obstructions. The pain is so severe and come and goes. The doctors said there's not much they can do for me. Removal of the adhesions can cause more adhesions.

Comment from: Cherokee, 55-64 Female (Patient) Published: July 19

I had pelvic pain and blood in my urine for six months. Pain in my left ovary and uterus was intense and I thought for sure that it was a female organ problem. I have a wonderful obstetrician/gynecologist who has been my doctor for 24 years. He did laparoscopy, uterine hysteroscopy, and bladder cystoscopy and everything looked great except that he found extensive scar tissue adhesions on my colon which he thinks were left over from my gallbladder surgery 17 years ago. He removed the scar tissue and I hope that this will be the solution to the severe pelvic pain.

Comment from: lulu smith, 75 or over Female (Patient) Published: May 09

I have had pain for over 5 months in my belly, intestinal and cervical area on the right side that affects my ability to go to the bathroom, hurts, and swells low and up the right side. Tests show nothing except scan shows something perhaps left from prior surgery, a hernia in belly button area, a small but growing tumor on the adrenal gland and I know there is a clot catcher in there somewhere. I had surgery in my twenties for a baby problem, I also had my tubes tied in my thirties, and was treated for ulcers and diverticulitis in my thirties and forties. I suffered with a deep vein thrombosis in my leg in 2008 and 3 entries across my stomach and down my leg, with the last one jerked out too fast leaving me in agony across my lower abdomen. Unfortunately, also my father beat and kicked me with his work boots. So there seem to be reasons to look at abdominal adhesions.

Comment from: MsTamara, 35-44 Female (Patient) Published: October 21

I have had five surgeries and my body builds up scar tissue and abdominal adhesions because with every surgery they have had to remove a lot. I am always in pain and I can hardly take it. What makes me sad is that every doctor tells me there is nothing they can do. So in other words I have to live the rest of my life in this horrible pain. It even hurts when I sit down. Walking is horrible, and when I sit for a long time and I stand up I feel like crying it hurts so badly. There have been times when I have wondered to myself, why I should have to spend the rest of my life in pain. I have been hurting for 10 years now but for the last four years it has gotten worse. I can't take it anymore I wish I had some help.

Comment from: Kitkat, 45-54 Female (Patient) Published: August 26

In 2005 I got partial hysterectomy, and two days later had internal bleeding. Now I have a scar straight past belly button. Three years later in 2008 woke up in severe pain and had emergency surgery for abdominal adhesion and blockage. Then three years later 2011 same thing. Now I'm going through same bloating, look pregnant, and have constipation. Just waiting, it is now 3 years.

Comment from: tummytrouble, 35-44 Female (Patient) Published: December 17

Adhesions are nothing to play with! When they have blocked your bowel it is a pain that exceeds the 0-10 scale. It's been 3 months since I was cleaned stem to sternum of abdominal adhesions. Within 6 weeks I was in excruciating pain and vomiting stool! The six attempts at getting a nasogastric tube in place were unsuccessful and gave me a severe nose bleed to the point that I was vomiting not only stool but my own blood. Finally the decision was made to insert a tube into my stomach to drain it. It was the only thing that relieved the pain. I am now still with the stomach tube and on TPN (total parenteral nutrition) because I lost 25lbs in 7 to 10 days. Since then I've only been able to gain 5lbs. Eating is a chore. I have PTSD (posttraumatic stress disorder) from the whole experience sometimes I scream out in pain while I'm sleeping! This has been a horrible experience but thankfully I finally got my doctor to listen when I told them something was wrong because my stool looked like little worms! Fecal incontinence was also a big problem!

SLIDESHOW

What's Causing Your Abdominal Pain? See Slideshow
Comment from: Sylvadoll, 25-34 Female (Patient) Published: December 17

I believe I may have abdominal adhesions. I had my gall bladder removed laparoscopically in 2009. About a year ago I started having this intense pain around my belly button. It feels like pins and needles most of the time, but occasionally it feels like someone is stabbing me from the inside. The pain is localized to the area that was cut, my belly button, straight up the abdomen and it stops right before my sternum. I also developed keloids after surgery. The pain gets worse when I lay down. I cannot even just get up anymore. I have to roll over then slowly push myself up. When I do that I feel this tugging sensation in my abdomen. The pain also worsens during my menstrual period and slowly goes away after it is over.

Comment from: Melinda S, 55-64 (Patient) Published: January 29

Twenty six years ago, I had a total hysterectomy, cervix and ovaries included plus many cysts. I was cut from navel to pelvic area twice in one year. Once was to remove cysts and one ovary, six months later everything else was removed along with more cysts. I was 29 years old, now I'm 55 years old and dealing with stomach bulging, pain, and even pain in the lower pelvic area which I thought was my bladder but that's been ruled out. So I wonder if it could be abdominal adhesions causing this horrible pain.

Comment from: Robyn, 55-64 Female (Patient) Published: September 19

I have lower right cramping (like as in periods but I'm 55 and in menopausal) and sharp pinching in the cervix area and wonder it is caused by adhesions.

Comment from: Swainlow, 55-64 Male (Patient) Published: August 21

I had 3 cysts removed from my liver and had my gallbladder removed. I had a hernia repaired in my stomach as well. Now, I have sharp sticking pains in the stomach, I wonder if it is because of abdominal adhesions. My left hip and leg hurts.

Comment from: VAhealthcare, 45-54 Female (Patient) Published: August 07

I don't know if I have abdominal adhesions and I don't know how to ask the doctor to check. My insides constantly feel like twisting, tugging, ripping, and pulling. Gas builds up and I get some temporary relief from the pressure when I can pass air. I have a lot of air, from both ends as though it comes out however it can. My intestines feel like they itch inside. I feel sunburnt inside and have that sensation of when a sunburn feels tight and the pain when it's stretched. I was told I have liver scarring. My gallbladder and appendix have been removed.

Comment from: david r, 75 or over Male (Patient) Published: December 27

I had a fundoplasty 25 years ago, and my stomach has never been the same again because of abdominal adhesions. My bowels seem to have stopped moving, and it is difficult to have a bowel movement.

Comment from: Weary, 65-74 Female (Patient) Published: July 20

I wonder if a stabbing, burning pain in navel be due to adhesions. I have had multiple surgeries so have lots of scar tissue.

Comment from: Missy, 45-54 Female (Patient) Published: June 01

I had a C section 28 years ago. My second one was 13 years after and when they did the second C section the doctors said they cut off a lot of adhesions and they said I will get a lot of pain when I get my periods. Four years later I had another C section and I took an injection to stay awake during the surgery. After the baby came out I could feel the pulling and tugging in my stomach which they said was due to the adhesions being so thick to cut out. Now 11 years after I still get stomach pains and can't lie down comfortably without feeling as if my stomach is falling out.

Comment from: ShannonLee56, 55-64 Female (Patient) Published: September 20

I had a full hysterectomy in July 2016 and so it's been about 2 and a half months. Lately I have been experiencing tenderness touching my stomach. Sometimes I can barely run my fingers over my skin and it feels like a sunburn. But my abdomen is tender in different areas. It even hurts when I sit down, walk and sometimes lying in different positions. In the past, I have had 2 gastric bypasses. One was a revision. I also had a tummy tuck. It looks like I have a hernia but it is not in the area that hurts. It feels like something sharp is poking me from the inside of my stomach behind my belly button. The pain is sharp. I just had a CT done on my abdomen and it showed nothing. I think it must be abdominal adesions. I am in pain management for other issues. I also suffer from fibromyalgia. It seems like hydrocodone is the only thing I can take for the pain.

Comment from: treetoper, 35-44 (Patient) Published: December 29

Twenty years ago I got gall bladder surgery. The belly button did not work so they cut right side. For a few years I have had numbing around the area except for a sticky feeling when I move a certain way. I have made lots of trips to the doctor, but nothing helped and I am concerned about abdominal adhesions. Seven months ago I was told I have ankylosing spondylitis so I started physical therapy to build up my abdominal muscles. During treatment I got bad burning and sharp pain on the scar. Today I woke up sick and hurting in the area, and when looking at it I noticed a small deep bruise that is very painful.

Comment from: rappar, 35-44 Female (Patient) Published: December 02

I have been living in constant pain because abdominal adhesions for the last 10 years. It only gets worse and I have yet to find any hope of help.

Comment from: StorminNorman, 45-54 Male (Patient) Published: September 03

I am a 46 year old male who has recently had hiatal hernia surgery, Nissen fundoplication and gallbladder removal surgery. They found adhesions at the gallbladder site and in the pelvis area and cut them out. My stomach is tender to the touch, and my doctor says everything is normal, but I am very concerned. They have done a barium swallow and x-ray to see if everything is okay, so far so good.

Comment from: Suffering, 55-64 Female (Patient) Published: March 10

I am suffering from abdominal adhesions because I have had 3 separate stomach surgeries. I am debating on having some of the scar tissue removed. My doctor advised me that no surgeon in my town will do it. The pain is increasing and happening more often now. It is the worst pain ever. I never have any notice when it is going to matter. My doctor also advised me that if they open me up again I will grow more scar tissue, like robbing Peter to pay Paul. I don't know what to do. It is ruining my life!

Comment from: Valerie, 45-54 Female (Patient) Published: November 19

After 2 1/2 years of undiagnosed abdominal pain and being sent home from the emergency room (twice) because they don't know what's wrong, I finally got surgery last week. It was a small hernia near an old laparoscopy site (had laparoscopy 25 years ago, and 2 years ago to remove gallbladder and appendix as a guess to what is wrong) and there were 2 adhesions, one on colon near stomach and one on my poor liver which was very attached to scar tissue.

Comment from: bebeofthree, 55-64 Female (Patient) Published: July 30

Today is day five after having my gall bladder removed. Since I had hernia surgeries with patches they could not take it out through my belly button. So I am cut on my side bruised so bad it just aches. I had adhesions so bad and the gall bladder was attached to the liver which is enlarged. I wish there was a way to stop adhesions. I get them so bad that everything inside of me sticks together.

Comment from: Delia, 35-44 Female (Patient) Published: April 01

I had an abdominal myomectomy eleven weeks ago in which 27 fibroid tumors were removed. I am still in pain. Almost immediately after my surgery and throughout my entire recovery I have been experiencing horrendous gastrointestinal cramping and very loud bowel sounds. I was convinced I had a partial small bowel obstruction due to adhesions from the surgery. Abdominal distention was hard to assess because I was so swollen from the surgery. But I was not vomiting, was having daily bowel movements, did not have a fever, etc., so I never did go to hospital. I was seeing the doctor regularly for post-operation appointments and he kept telling me it was all part of the healing process. Now, eleven weeks into my recovery I am still experiencing intestinal cramping and pain, but it has gotten better over these weeks. I don"t know what to think. Just happy I"m going in the right direction. Perhaps it has all been caused by swelling from surgery. I do not know.

Comment from: bekkah, 25-34 Female (Patient) Published: March 26

I had a total hysterectomy almost a year ago. It was for the treatment of cervical cancer, but since I had signs of endometriosis, they removed the ovaries as well. Even though I had the da Vinci robotic surgery and I only (I say "only" loosely) had 5 small incisions, I feel like I may have adhesions from the surgery. I did have a laparoscopy about 7 years before my hysterectomy, so may be that contributes to it. My symptoms include bloating temporarily, menstrual like cramping, and a "tight" feeling - like there are strings holding my skin outside to something on the inside and if I stretch too far... well, I"m sorry I stretched at all. It doesn"t seem to affect me daily, but sometimes the cramping and bloating are just awful! Being 45 and on the estrogen pills, I know I deal with menopause symptoms but I"m wondering if the synthetic hormones contribute to this at all… may be like it is tricking my body into thinking I"m having a period sometimes. I don"t have any bleeding or discharge problems, but the tightening and cramping are brutal sometimes and I wish I could find an answer!

Comment from: June, 65-74 Female (Caregiver) Published: October 08

My symptom of my abdominal adhesion is that my stomach bloats. I look pregnant. It makes me feel bad. I had a hysterectomy when I was 28. I have been having swelling the past few months. It's getting worse. I had an x-ray and it showed I had adhesions of the bowel. I am taking PhaZyme. It helped a few days, but last night it swelled really big. The swelling goes down over night. When I'm not swelled I have a flat stomach.

Comment from: Victoria Roberts, 45-54 Female (Patient) Published: July 17

I am up with pains in my stomach from abdominal adhesions and can't go to sleep.

Comment from: Sharon Schell, 65-74 Female (Patient) Published: June 13

It feels like my insides are being stretched apart or pulled on like you would stretch a rubber band. There is also a lot of gas and bloating. I live in constant pain for 12 years now. I have been to doctors and been told I have gastritis, irritable bowel syndrome, gastroparesis and oversensitive nerve endings so my pain is terrible. I hope all of you are feeling better.

Comment from: anna, 65-74 Female (Patient) Published: April 13

I have been in the hospital with two partial blockages. The doctors were able to relieve both blockages, by giving me lots of medicine. I was also very dehydrated and they had to give me 22 bottles of sodium drip. Now I am back at home, taking Miralax. Now this is the third day I haven't had a bowel movement again. I am hurting very badly in my left abdomen and my lower back.

Comment from: lin, 45-54 Female (Patient) Published: September 21

I have adhesions and will need surgery.

Comment from: pet lover, 55-64 Female (Patient) Published: April 07

I have had gall bladder surgery followed by a hernia surgery 2 month later. I have abrasions around scar near navel area. I have pain stabbing once in a while but keep getting swelling from the area with hot feeling around them. My doctor treated once with antibiotics, but it has broken out again with blisters around this area. It's been around 2 years since the surgery.

Comment from: Anita Hassey, 65-74 Female (Patient) Published: August 23

I first had a partial hysterectomy in 1978. Within six months, I had pain in my abdomen. Five years later, I had surgery for abdominal adhesions. They left the ovaries, which I felt may be the cause. Another five years later, I had another surgery for abdominal adhesions, and this time the doctor took my ovaries. Each of these surgeries was done by hip-to-hip incisions. Finally, 13 years ago I had a third surgery (since the original hysterectomy) for abdominal adhesions. This one, however, was done with a laporoscope. I have had no trouble until the last couple of months. The old familiar dull ache has been growing more and more intense. I'm now nearly 66 years old and probably facing a fourth surgery for adhesions. What would you suggest? Thanks very much.

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